Crazy Fun

I haven't updated for a while because I'm soaking up the fun of being with Annabelle and Layla. Seriously, these girls are crazy. Consider Sunday dinner today...Layla was shaking her head back and forth so fast and babbling crazy things at the same time. Soon Annabelle joined in and the two of them serenaded (?) us. That's exactly how it has been lately. Annabelle seems to be more energetic and goofy than ever. I was thinking it was the cancer that has changed her, but maybe it's just the age/phase. I do believe, though, that now she knows when she feels good that she better make the most of it! She dances around while listening to her favorite songs. She does victory dances when playing games. Layla pesters Annabelle until she squeals and then laughs and laughs. They have been a lot of fun. I'm too tired to write too much, but here are some pictures to enjoy.

And for Annabelle's update...Turned out she did have C-Diff again, or still. Apparently it is common for Ewing's patients to continually have it so she will be on Flagyl for the duration of her treatment. She also was having a really high white count and her hematocrit dropped quickly so she was put on another 2 antibiotics. They wanted to give her a blood transfusion but they literally didn't have a 2 hour period where her central line was available to infuse. That's a lot of meds going on! They were going to give her a peripheral IV just to give her blood but then the Dr decided to drop one of the antibiotics so that opened up a slot and she was able to get some blood. After that she recovered quickly and was SO happy when she was discharged on Wednesday. She said when the nurse unhooked her that she was going to run around her room and sure did! It was hilarious. Having to be isolated to her room because of the C-diff really drove her nuts! Since coming back we have been playing outside, soaking up the sun, going bowling, shopping and we have plans to visit a cupcake shop soon! We are livin' it up this summer.

For some reason her left foot has gotten blisters all over it but by the time we notice them they are already healed and the skin is peeling off. Any other cancer moms have experience with this? They are not open wounds so I'm not too worried about infection risk (unless she picks at them) but it was the weirdest thing. We never see them coming until they are already at that point and she is getting more each day. I'll have to take a picture and post it. Also last night when I was flushing her line, I couldn't get any blood to draw back. (I always check just to be sure since we had issues with her other line.) I had her lay back and reposition and then it did come. However, today when I was flushing I had the same problem except now I can get it to draw back no matter what position she is in, so home health is sending out Heparin and Cath-flo to see if we can get it working before lab draws tomorrow. The hardest thing rigth now is that I have to get up in the night and giver her meds through her feed tube and her central line. It gets exhausting after awhile. All I want is one night of uninterrupted sleep. Maybe next year...