Wednesday, October 19, 2011


Let me just say that anyone who has to have a child on steroids for long periods of time is my hero. Annabelle is taking Dexamethasone for 4 days to try and reduce the inflammation in her throat. 24 hours into the treatment my sweet girl turned into a beast. There is just no other way to explain it!

I'm sure it is helping, but her throat is basically sun burnt so she isn't going to be swallowing for a while anyway. However, there is hope that this treatment now is going to help prevent a stricture in her throat later, so I shouldn't complain. Apparently it is fairly common to have scar tissue build up from the inflammation and close things off 3-4 months after finishing radiation. We certainly don't want that to happen, so for the next few days I'll be taking frequent "bathroom breaks" (that's where I tell Annabelle I'm going when I need to get out of the room and take some deep breaths).

She is wearing her Sleeping Beauty princess dress today so I am preparing a sign for her door to put up while she is sleeping that reads...

Princess on Steroids
You Wake Her, You Take Her!

And I mean it!


Grandma Kroll said...

Oh Sally, I love you both! Only you could make me laugh when the whole cancer thing makes me so mad!! See I wasn't kidding about the steroids making a person mean but I will take her when I get there!!

Jenny said...

Dallin was on steroids for 6 months after his attack of hemolytic anemia. He took prednisilone, so I don't know if it has the same side effects. I only remember his incredible appetite, swollen face, and extreme energy. I was glad when he was finally weaned off.

I hope the meds help. It hurts to see how much she has to go through. We pray for you and her all the time.

LOVE the sign!!!

Carlin said...

Hunter was on steroids when he had rsv. It was on his second birthday and he was a beast!! It was so miserable. We feel your pain!